When your child is diagnosed with Cancer, everything changes.
Often you can be overloaded with information and it is hard to take it all in.
Here is a list of some amazing charities that may be able to help in various ways.
We have also included some useful resources for families affected by DIPG/DMG.
- Alfes Cause
A Northamptonshire charity raising awareness of childhood cancer and supporting families whose child has a long term illness (including cancer and heart problems.)
- Chelsea's Angels
Chelsea's Angels provide gifts to children diagnosed with Neuroblastoma and other rare Cancers. They also offer support to families and siblings.
- Child Bereavement UK
Child Bereavement UK supports families and educates professionals when a baby or child of any age dies or is dying, or when a child is facing bereavement. Every year we train more than 8000 professionals, helping them to better understand and meet the needs of grieving families.
- CLIC Sargent
CLIC Sargent is the UK’s leading cancer charity for children and young people, and their families. They provide clinical, practical, financial and emotional support to help cope with cancer. They are there from diagnosis onwards and aim to help the whole family deal with the impact of cancer and its treatment, life after treatment and, in some cases, bereavement.
- Clinical Trials
A list of clinical trials for DIPG
- DIPG Registry
Here you will find facts on DIPG, symptoms, treatments and info on active clinical trials.
- Get Support
The Brain Tumour Charity offers support groups in person, via phone and social media. They also provide information packs to people affected by a brain tumour.
HeadSmart is a project that aims to enhance the awareness of symptoms of brain tumours in children and young people.
Make-A-Wish grant magical wishes to children and young people fighting life threatening conditions.
- Ronald McDonald House Charities
Ronald McDonald House Charities provides free 'home away from home' accommodation to families while their child is in hospital.
- The Brain Tumour Charity
The Brain Tumour Charity fund pioneering research, raise awareness of the symptoms and effects of brain tumours & provide support.
- The Henry Allen Trust
The Henry Allen Trust provide treats and wishes to create special memories for families affected by childhood Cancer. They also offer support and advice to the families, and work on improving processes for oncology services within hospitals.
- Thomas Fund
Thomas's Fund provide music therapy in Northampton for children and young people with life limiting illnesses or a disability which, for medical reasons means they are too ill to attend school for extended periods.